We cannot be more proud of our little man.
Enzo finished the hospital week with a very big smile, charming the doctors and nurses, and anyone who was near him at the Boston Children Hospital.
He is officially enrolled in the new trial run by The Progeria Research Foundation. With all our HOPE and PRAYERS that the two medications together make a lot of difference in our kids.
Many many many THANKS to Dr Gordon for bringing light to our lives.
This year we had the privilege to be a part of the Progeria family weekend at The Hole in the Wall Gang Camp.
A mix of feelings to meet such incredible families. Just a dream come true for us.
The Hole in the Wall Gang Camp is an amazing place, with even more amazing people working there.
A few pictures to show what an AMAZING weekend we had.
Thank you to all of you who made this happen.
We are so thankful to our friends and supporters who run and walk today. To all of you who has donated to Team Enzo... It was an amazing day!!!
Specially thanks to Morna, Anace, Chris, Mia, Leila, Lili and Percy for wait for all the team at our stand!!!
This year the biggest team ever, our stars ...
Alexandra, Alejandro, Andrea, Andres, Belinda, Carlos, Carola, Catherina, Chelsea, Christ, Claudia, Con, Darcy, Diane, Enzo, Francesca, Gladys, Hannah, Hayden, Helen, In nik, Ina, Ines, Inge, Javier, Jeremy, Jess, Josh, Julie, Kate, Katie, Kayla, Liana, Lilijana, Lily, Linda, Lori, Lucy, Luis, Maria, Matt, Matthew, Michael, Michelle, Monica, Monique, Naomi, Nicole, Quenten, Rachael, Rachel, Rhett, Richard, Ruby, Saskia, Sandy, Sarah, Savanah, Shirley, Stephanie, Sue, Trisha, Valeria, Zalmee
We cannot thank them enough for all their time and dedication for this event.
The LOVE you have for Enzo has helped us immensely in our journey with Progeria.
See you all next year !!!