And this is my story!
On the 11th of August 2014, I was diagnosed with Progeria, an extremely rare genetic disorder wherein symptoms resembling aspects of aging are manifested at a very early age.
The disorder occurs in an estimated 1 per 20 million worldwide, so I consider myself very special!
I am the third known case in Australia and the only diagnosed child alive in the country today. However, there might be another child suffering of Progeria, unaware of the treatments available to them.
Everyone is doing their bit to keep me safe and healthy and we are all working hard so we can write a very happy ending for my story and for all the kids around the world suffering from progeria.
Team Enzo is made up by beautiful people who support Enzo and his parents through his journey with Progeria. They also participate and organise different fundraising activities during the year.
Since 2014 Team Enzo has been supporting The Progeria Research Foundation to raise awareness and funds to discover treatments and the cure for Progeria and its aging related disorders.
From humble beginnings as a small volunteer-driven group Team Enzo Foundation has evolved to become a Necessitous Circumstances Funds to support Enzo, and his family, through his journey with Progeria.