Progeria Research Foundation
The pain of knowing your child has an incurable disease is indescribable, but thanks to The Progeria Research Foundation (PRF), there is hope.
The Progeria Research Foundation (PRF) is the only non-profit organisation solely dedicated to finding treatments and the cure for Progeria, and is realising these goals at a remarkable pace: from total obscurity, to gene discovery, to first-ever Progeria clinical drug trials, to the discovery of the very first drug treatment – all in just 13 years!
We are lucky to count on the PRF for working hard to find the cure. There are more than 4000 rare diseases and more than 50% of them don’t have a foundation that seeks to find a treatment or a cure.
Thanks to the PRF, in less than one year from diagnosis, Enzo was able to start his treatment and traveled to Boston for his first trial visit. We are extremely happy and thankful for all the people at PRF that made this happen.
Together we will find the cure!