We have no words to describe how grateful we are for the day we had. For all the continous support of many people that made it possible for us to participate in this event.
Thank you to Bunnings and all their beautiful staff for the opportunity. On a positive note, we are happy to share that recent trials run by The Progeria Research Foundation (PRF) have shown their treatments extend the lifespan of children with Progeria until their early twenties. In 2020, the first treatment arising from these trials was approved in the USA. We are very fortunate that Enzo has been able to participate in these trials. At the moment, we are waiting for a new trial run by PRF to begin in late 2024; we are hopeful that these trials will further extend the lifespan of children with Progeria. Thank you to our sponsors for helping us cover the costs, specifically: Sign Tech, Coke & Chip Club, Nevares Family, Young Family & Woolworths Brighton. Thank you to Our volunteers for making this day possible, full of FUN and lots of work. Youla, Mariella, Anton, Oisin, Caroline, Beck, Tash, Matt, Morna, Chris, Leila, Diane, Con & Victor. To our friends, family, Enzo’s community new and old that came around for a quick lunch and quick catch up. To Bunnings customers for the continuous support to this charity event, you are the best supporters. Hope everyone enjoyed a delicious sausage sizzle and cold drink. See you next time !!!
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Past Events
March 2024
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