This year HatsON event was a huge success! Thank you all for support this beautiful cause and maintain our faith up!
St Marys Memorial raised $ 644.70 and with the help of Montezuma's Glenelg we $1,000 raised on HatsON day!
Big thanks to "tia Julie" at Montezuma's Glenelg to make this possible.
Thank you to the fantastic crew at the restaurant, you are all amazing!!!
Enormous thank you to each of you who came and enjoyed a very yummy meal. Together we will find the cure.
Have you ever seen a more excited and enthusiastic coin tosser?
Enzo's first footy game was a great experience! He is thrilled with his new BIG buddy, Josh Scott. Go Josh!!! Go tigers
SAVE the day April 7th - HatsON Adelaide
Put on your favourite hat and join us @ Montezuma-Glenelg on Friday 7 April!
For the third year in a row, Montezuma's Mexican Restaurant Glenelg is organising a HatsON event for raising awareness about Progeria as well as fundraising. Dine in or take away to support this cause. The restaurant is donating 10% of April 7th proceeds to the Progeria Research Foundation.
Don't forget to bring your best smile and pose to Enzo, who will be taking photos on the day!
HatsON for Progeria Day is a worldwide event. Wear you favourite hat for a good cause and show your support to all the kids with Progeria and their families as well to all doctors investigating for the cure!
Remember to share your photos using #HatsON
We look forward to seeing you there!
Team Enzo Progeria
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Yesterday, we had another great evening at Fancy Burger - Blackwood.
Thank you everyone to come enjoy a delicious burger and support this great cause.
Special thanks to Michael to make this happen.
Thank you to all Team Enzo supporters!
We had a great run/walk yesterday and today we have reached our goal for 2016 city to bay.
Thank you SO MUCH for all your support!
This campaign is supporting the Progeria Reseach Foundation in the new trial where an additional drug called everolimus has been added to lonarfanib, this is expected to improve the situation of many kids that live with Progeria, and Enzo will also be part of it.
Thank you SO MUCH !
Together we will find the cure !!!
A note from Enzo
Since my diagnostic my childcare’s staff, Warrandale Community Center - Park Holme, had participated in CITY TO BAY FUN RUN to raise awareness for PROGERIA.
This year, I am got to to walk the 3KMS together with the friends that have been supporting us during the pass two years!
Special thanks to each of you for being on our side supporting us in this journey of hope.
We don't have extended family in Australia, but we have great FRIENDS. Great 'tios' for Enzo, very special ones as Tia Julie Baker, that always makes Enzo feels so special. Tios that support every event as Tio Luis and Tia Michelle.
Everyone is doing their bit to keep Enzo safe and healthy, we hope one day soon we can write a different story with a very happy ending for Enzo and all the kids around the world suffering from Progeria.
Thank you ALL
I am speechless....I have just received a message with the total amount of money we raised on behalf of TEAM ENZO for Progeria Research Foundation last weekend.
I would have never thought that the initial idea of getting together with a bunch of brazilian girls on a monthly basis and dance to some of the song we used to " a few" years ago.....would turn into regular fundraisers.
During our 2nd lesson it was suggested our next class should support PRF....and once again... wonders of destiny.
Our search for a venue for our class turned into an invitation to have a brazilian sweets stall over the weekend at La Bomba ' s fringe.
At first we wondered if we could pull it off....but we were soon overwhelmed with messages from sooo many people offering to bake and donate amazing treats......each of them made with so much love and care for little Enzo and his beautiful family.
Today.....I have been informed of the total amount raised:
If dancing with a bunch of funny girls wasn't enough.....we have created this circle of love and giving which I am so very grateful to be a part of.
Thank you to each and everyone of you who have in some way supported our crazy ideas....and special thank you to the amazing Juliana Bernardi Munro for organising us all.
Thanks Team Enzo
What a weekend! Despite the hot weather (38') ending up with a storm. The Brazilian Association of SA (BASA) was able to organized a Fundraising Dance Class and a Brazilian sweet sale to support The Progeria Research Foundation - Team Enzo. Thank you So MUCH for all your Love!
The delicious desserts all made with love to help our little kids with Progeria were made by: Monica Miyasato, Gisely Franco, Suzana Canut, Suzana Pacheco, Silvia Mittiga, Ana Lucia, Vanessa Nunes, Sabrina Porto, Vanessa Moraes Cury, Fabiana Canut, Anna Child, Andrea Hughes, Tanja, Daiana, Cristiane Carlos, Patricia Flaquer, Samara Ribero, Milver Franca Tortola, Marina Ribeiro, Cyntia Novaes, Ina, Claudia Ferri de Lima, Andrea Kress, Juliana & Gugu. Thank you so MUCH!
Big thanks to Juliana, Tanja & Marina for organize this two events and La Bomba for allow them a spot on their event "Mi casa es tu casa".
Big big big Thanks to Ana Lucia, Cyntia, Juliana, Marina & Tanja for selling the treats today and to all the people to come to buy or ask for a delivery to support this great cause.
Together we will find the cure!
Team Enzo is at it again! This time, Fancy Burger in Australia held a fundraiser - they sold 270 burgers! Along with a collection box and donations, they raised over $360(US) - $AUD 509!
From Enzo's Mom:
"What a great evening yesterday at Fancy Burgers - Blackwood. Thank you to everyone who enjoyed and supported this great cause. Special thanks to Michael to make this all happen. Together we will find the cure!!"