This year we had the privilege to be a part of the Progeria family weekend at The Hole in the Wall Gang Camp.
A mix of feelings to meet such incredible families. Just a dream come true for us.
The Hole in the Wall Gang Camp is an amazing place, with even more amazing people working there.
A few pictures to show what an AMAZING weekend we had.
Thank you to all of you who made this happen.
We are so thankful to our friends and supporters who run and walk today. To all of you who has donated to Team Enzo... It was an amazing day!!!
Specially thanks to Morna, Anace, Chris, Mia, Leila, Lili and Percy for wait for all the team at our stand!!!
This year the biggest team ever, our stars ...
Alexandra, Alejandro, Andrea, Andres, Belinda, Carlos, Carola, Catherina, Chelsea, Christ, Claudia, Con, Darcy, Diane, Enzo, Francesca, Gladys, Hannah, Hayden, Helen, In nik, Ina, Ines, Inge, Javier, Jeremy, Jess, Josh, Julie, Kate, Katie, Kayla, Liana, Lilijana, Lily, Linda, Lori, Lucy, Luis, Maria, Matt, Matthew, Michael, Michelle, Monica, Monique, Naomi, Nicole, Quenten, Rachael, Rachel, Rhett, Richard, Ruby, Saskia, Sandy, Sarah, Savanah, Shirley, Stephanie, Sue, Trisha, Valeria, Zalmee
We cannot thank them enough for all their time and dedication for this event.
The LOVE you have for Enzo has helped us immensely in our journey with Progeria.
See you all next year !!!
This year HatsON event was a huge success! Thank you all for support this beautiful cause and maintain our faith up!
St Marys Memorial raised $ 644.70 and with the help of Montezuma's Glenelg we $1,000 raised on HatsON day!
Big thanks to "tia Julie" at Montezuma's Glenelg to make this possible.
Thank you to the fantastic crew at the restaurant, you are all amazing!!!
Enormous thank you to each of you who came and enjoyed a very yummy meal. Together we will find the cure.
Have you ever seen a more excited and enthusiastic coin tosser?
Enzo's first footy game was a great experience! He is thrilled with his new BIG buddy, Josh Scott. Go Josh!!! Go tigers
SAVE the day April 7th - HatsON Adelaide
Put on your favourite hat and join us @ Montezuma-Glenelg on Friday 7 April!
For the third year in a row, Montezuma's Mexican Restaurant Glenelg is organising a HatsON event for raising awareness about Progeria as well as fundraising. Dine in or take away to support this cause. The restaurant is donating 10% of April 7th proceeds to the Progeria Research Foundation.
Don't forget to bring your best smile and pose to Enzo, who will be taking photos on the day!
HatsON for Progeria Day is a worldwide event. Wear you favourite hat for a good cause and show your support to all the kids with Progeria and their families as well to all doctors investigating for the cure!
Remember to share your photos using #HatsON
We look forward to seeing you there!
Team Enzo Progeria
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Yesterday, we had another great evening at Fancy Burger - Blackwood.
Thank you everyone to come enjoy a delicious burger and support this great cause.
Special thanks to Michael to make this happen.
Thank you to all Team Enzo supporters!
We had a great run/walk yesterday and today we have reached our goal for 2016 city to bay.
Thank you SO MUCH for all your support!
This campaign is supporting the Progeria Reseach Foundation in the new trial where an additional drug called everolimus has been added to lonarfanib, this is expected to improve the situation of many kids that live with Progeria, and Enzo will also be part of it.
Thank you SO MUCH !
Together we will find the cure !!!
A note from Enzo
Since my diagnostic my childcare’s staff, Warrandale Community Center - Park Holme, had participated in CITY TO BAY FUN RUN to raise awareness for PROGERIA.
This year, I am got to to walk the 3KMS together with the friends that have been supporting us during the pass two years!
Special thanks to each of you for being on our side supporting us in this journey of hope.
We don't have extended family in Australia, but we have great FRIENDS. Great 'tios' for Enzo, very special ones as Tia Julie Baker, that always makes Enzo feels so special. Tios that support every event as Tio Luis and Tia Michelle.
Everyone is doing their bit to keep Enzo safe and healthy, we hope one day soon we can write a different story with a very happy ending for Enzo and all the kids around the world suffering from Progeria.
Thank you ALL