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On the 12th of April, Enzo’s school, St. Mary's Memorial School Glenelg, hosted the Greatest Shave! Here are some highlights of the day. Thank you so much to all who got involved with this event! We really appreciated it ❤️ A big thank you to Lily McFarlane for organizing The Greatest Shave Day, thank you to Mark Nelson for the idea, to Nat Izzo for making it possible and to the year 6 students for all their support in the fundraiser.
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 Join our "Team Enzo" on Sunday 16th September and raise funds for supporting Enzo and his family through his journey with Progeria.
The more people that know about Progeria, an extremely rare autosomal dominant genetic disorder in which symptoms resembling aspects of aging are manifested at a very early age, the greater our impact, so please spread the word and ask your friends, family and colleagues to join our team. To join our team, it is very important you follow this two-step process: STEP ONE
STEP TWO Now that you are officially registered for the City-Bay, help fundraise for us by joining "City to Bay 2018 Team Enzo" on MyCause. Once you're there, you will be able to:
Please note that anyone is welcome to sponsor a friend or to donate. (e.g you don't need to be registered in City To Bay or have completed step one) THANK YOU! 
From 6.00pm enjoy a good chat with your friends over a glass of bubbles and then at 6.30pm enjoy a private screening, on the day of release, of the highly anticipated Mamma Mia: Here We Go Again. Grab your friends, family and lovers of Abba music for this fundraising event. Thank you to everyone who came to enjoy a delicious dinner! Thank you for all the pictures uploaded in the day! Thank you for all your incredible support through all these years... Thank you to Montezumas Team! You rock! And the biggest Thanks to Tia Julie for organising HatsON since 2015. You are incredible & awesome! See you at our next event, City to bay in September!!!!  With the incredible effort from Youla (The Wonderland Company), Peter (St Elias Church) and the support of all the volunteers & sponsors working together, Team Enzo raised a final amount of $11,590.11.
We would like to thank everybody that supported our Kids Carnival on Saturday, especially our volunteers. Thanks to this event, not only have we raised funds, but our small community is growing by raising awareness of Progeria. Once again, thank you for your continuous support and for spreading the word. We would also like to thank the following business for supporting our carnival.
A BIG Thank you to the IS Information System team at Helping Hand Aged Care for organising a terrific morning tea for Hats On for Progeria. You are amazing !!! Special thanks to Tia Nydia for introduce Progeria to her colleagues and create awareness about the disease.  We cannot be more proud of our little man. Enzo finished the hospital week with a very big smile, charming the doctors and nurses, and anyone who was near him at the Boston Children Hospital. He is officially enrolled in the new trial run by The Progeria Research Foundation. With all our HOPE and PRAYERS that the two medications together make a lot of difference in our kids. Many many many THANKS to Dr Gordon for bringing light to our lives. This year we had the privilege to be a part of the Progeria family weekend at The Hole in the Wall Gang Camp. A mix of feelings to meet such incredible families. Just a dream come true for us. The Hole in the Wall Gang Camp is an amazing place, with even more amazing people working there. A few pictures to show what an AMAZING weekend we had. Thank you to all of you who made this happen. We are so thankful to our friends and supporters who run and walk today. To all of you who has donated to Team Enzo... It was an amazing day!!! Specially thanks to Morna, Anace, Chris, Mia, Leila, Lili and Percy for wait for all the team at our stand!!! This year the biggest team ever, our stars ... Alexandra, Alejandro, Andrea, Andres, Belinda, Carlos, Carola, Catherina, Chelsea, Christ, Claudia, Con, Darcy, Diane, Enzo, Francesca, Gladys, Hannah, Hayden, Helen, In nik, Ina, Ines, Inge, Javier, Jeremy, Jess, Josh, Julie, Kate, Katie, Kayla, Liana, Lilijana, Lily, Linda, Lori, Lucy, Luis, Maria, Matt, Matthew, Michael, Michelle, Monica, Monique, Naomi, Nicole, Quenten, Rachael, Rachel, Rhett, Richard, Ruby, Saskia, Sandy, Sarah, Savanah, Shirley, Stephanie, Sue, Trisha, Valeria, Zalmee We cannot thank them enough for all their time and dedication for this event. The LOVE you have for Enzo has helped us immensely in our journey with Progeria. See you all next year !!! |
