A BIG Thank you to the IS Information System team at Helping Hand Aged Care for organising a terrific morning tea for Hats On for Progeria. You are amazing !!!
Special thanks to Tia Nydia for introduce Progeria to her colleagues and create awareness about the disease.
We cannot be more proud of our little man.
Enzo finished the hospital week with a very big smile, charming the doctors and nurses, and anyone who was near him at the Boston Children Hospital.
He is officially enrolled in the new trial run by The Progeria Research Foundation. With all our HOPE and PRAYERS that the two medications together make a lot of difference in our kids.
Many many many THANKS to Dr Gordon for bringing light to our lives.
This year we had the privilege to be a part of the Progeria family weekend at The Hole in the Wall Gang Camp.
A mix of feelings to meet such incredible families. Just a dream come true for us.
The Hole in the Wall Gang Camp is an amazing place, with even more amazing people working there.
A few pictures to show what an AMAZING weekend we had.
Thank you to all of you who made this happen.
We are so thankful to our friends and supporters who run and walk today. To all of you who has donated to Team Enzo... It was an amazing day!!!
Specially thanks to Morna, Anace, Chris, Mia, Leila, Lili and Percy for wait for all the team at our stand!!!
This year the biggest team ever, our stars ...
Alexandra, Alejandro, Andrea, Andres, Belinda, Carlos, Carola, Catherina, Chelsea, Christ, Claudia, Con, Darcy, Diane, Enzo, Francesca, Gladys, Hannah, Hayden, Helen, In nik, Ina, Ines, Inge, Javier, Jeremy, Jess, Josh, Julie, Kate, Katie, Kayla, Liana, Lilijana, Lily, Linda, Lori, Lucy, Luis, Maria, Matt, Matthew, Michael, Michelle, Monica, Monique, Naomi, Nicole, Quenten, Rachael, Rachel, Rhett, Richard, Ruby, Saskia, Sandy, Sarah, Savanah, Shirley, Stephanie, Sue, Trisha, Valeria, Zalmee
We cannot thank them enough for all their time and dedication for this event.
The LOVE you have for Enzo has helped us immensely in our journey with Progeria.
See you all next year !!!
This year HatsON event was a huge success! Thank you all for support this beautiful cause and maintain our faith up!
St Marys Memorial raised $ 644.70 and with the help of Montezuma's Glenelg we $1,000 raised on HatsON day!
Big thanks to "tia Julie" at Montezuma's Glenelg to make this possible.
Thank you to the fantastic crew at the restaurant, you are all amazing!!!
Enormous thank you to each of you who came and enjoyed a very yummy meal. Together we will find the cure.
Have you ever seen a more excited and enthusiastic coin tosser?
Enzo's first footy game was a great experience! He is thrilled with his new BIG buddy, Josh Scott. Go Josh!!! Go tigers
SAVE the day April 7th - HatsON Adelaide
Put on your favourite hat and join us @ Montezuma-Glenelg on Friday 7 April!
For the third year in a row, Montezuma's Mexican Restaurant Glenelg is organising a HatsON event for raising awareness about Progeria as well as fundraising. Dine in or take away to support this cause. The restaurant is donating 10% of April 7th proceeds to the Progeria Research Foundation.
Don't forget to bring your best smile and pose to Enzo, who will be taking photos on the day!
HatsON for Progeria Day is a worldwide event. Wear you favourite hat for a good cause and show your support to all the kids with Progeria and their families as well to all doctors investigating for the cure!
Remember to share your photos using #HatsON
We look forward to seeing you there!
Team Enzo Progeria
Renewal SA is raising as much as they can to support Team Enzo, and they need your help! Order your NEW 2017 | 2018 Entertainment Book or Entertainment Digital Membership now. Cost: AU$70.00
You'll receive hundreds of valuable offers for everything you love to do, and help our fundraising at the same time!
Yesterday, we had another great evening at Fancy Burger - Blackwood.
Thank you everyone to come enjoy a delicious burger and support this great cause.
Special thanks to Michael to make this happen.